At 14 years old, Jonathan Pitre appears to have a superhuman ability to deal with the constant pain of epidermolysis bullosa, the rare disease that has been a part of his life from infancy. In this moving and inspiring video we get a glimpse of his life and that of his devoted mother, as they face daunting challenges with love, strength, courage and the heroic ability to reach out and inspire others in the process. Jonathan's skin may be extremely fragile like the wings of a butterfly, but his spirit knows no bounds.
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